{"id":4838,"date":"2025-09-08T21:18:23","date_gmt":"2025-09-08T19:18:23","guid":{"rendered":"https:\/\/1mil-lya.fr\/?p=4838"},"modified":"2026-10-09T09:54:25","modified_gmt":"2026-10-09T07:54:25","slug":"nos-actions-anessia","status":"publish","type":"post","link":"https:\/\/1mil-lya.fr\/en\/nos-actions-anessia\/","title":{"rendered":"Anessia"},"content":{"rendered":"

\"Nos<\/span><\/div><\/div>

Anessia – 01<\/h1><\/div><\/div><\/div>

<\/span> Notre action<\/span><\/path><\/svg><\/span> <\/span><\/h1><\/div>

Le syndrome de Rett, dont souffre Anessia, est une maladie g\u00e9n\u00e9tique rare, touchant presque exclusivement les filles, qui se manifeste apr\u00e8s quelques mois de d\u00e9veloppement normal par une r\u00e9gression des acquis moteurs et cognitifs, entra\u00eenant un polyhandicap s\u00e9v\u00e8re.<\/p>\n<\/div>

Historique des dons :\u00a0<\/span><\/p>\n<\/div>

<\/i><\/div>

Juillet 2025<\/p><\/div>

<\/div>
\n

La maman d’Anessia avait du mal \u00e0 la porter. Nous avons aid\u00e9 pour l’achat d’une table de transfert et d’une table \u00e0 langer d’une valeur de 2049 \u20ac afin de faciliter la vie quotidienne de cette famille.<\/p>\n

Participation 1000 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Avril 2026<\/p><\/div>

<\/div>
\n

L\u2019association a financ\u00e9 du mat\u00e9riel destin\u00e9 \u00e0 la cr\u00e9ation de bodies sur mesure adapt\u00e9s \u00e0 la gastrostomie d\u2019Anessia. La main\u2011d\u2019\u0153uvre a \u00e9t\u00e9 r\u00e9alis\u00e9e b\u00e9n\u00e9volement par Laurie, pr\u00e9sidente de l\u2019association.<\/p>\n

Participation 494 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Septembre 2026<\/p><\/div>

<\/div>
\n
\n

Nous finan\u00e7ons une table de bain pliante pour elle, car elle a beaucoup grandi et, avec sa scoliose, son transat de bain actuel n\u2019est plus adapt\u00e9. Sa maman souffre \u00e9galement du dos lors des soins, ce qui rend cet \u00e9quipement indispensable pour leur quotidien.<\/p>\n

Aucune prise en charge n\u2019a \u00e9t\u00e9 accord\u00e9e par la\u00a0MDPH, nous avons donc assum\u00e9 l\u2019int\u00e9gralit\u00e9 du financement.<\/p>\n<\/div>\n

Participation 2285 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/i>

Pathologie :<\/p>\n<\/div>

Syndrome de Rett<\/p>\n<\/div><\/i>

Age :<\/p>\n<\/div>

\n <\/span>\n<\/div>\n<\/i>

Localisation :<\/p>\n<\/div>

Valserh\u00f4ne<\/p>\n

(Ain)<\/p>\n<\/div><\/i>

Don total de :<\/p>\n<\/div>

3779 \u20ac<\/p>\n<\/div><\/div><\/div><\/div><\/div>

\"Nos<\/span><\/div>

Anessia – 01<\/h1><\/div><\/div><\/div>

<\/span> Notre action<\/span><\/path><\/svg><\/span> <\/span><\/h1><\/div>

Le syndrome de Rett, dont souffre Anessia, est une maladie g\u00e9n\u00e9tique rare, touchant presque exclusivement les filles, qui se manifeste apr\u00e8s quelques mois de d\u00e9veloppement normal par une r\u00e9gression des acquis moteurs et cognitifs, entra\u00eenant un polyhandicap s\u00e9v\u00e8re.<\/p>\n<\/div>

Historique des dons :\u00a0<\/span><\/p>\n<\/div>

<\/i><\/div>

Juillet 2025<\/p><\/div>

<\/div>
\n

La maman d’Anessia avait du mal \u00e0 la porter. Nous avons aid\u00e9 pour l’achat d’une table de transfert et d’une table \u00e0 langer d’une valeur de 2049 \u20ac afin de faciliter la vie quotidienne de cette famille.<\/p>\n

Participation 1000 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Avril 2026<\/p><\/div>

<\/div>
\n

L\u2019association a financ\u00e9 du mat\u00e9riel destin\u00e9 \u00e0 la cr\u00e9ation de bodies sur mesure adapt\u00e9s \u00e0 la gastrostomie d\u2019Anessia. La main\u2011d\u2019\u0153uvre a \u00e9t\u00e9 r\u00e9alis\u00e9e b\u00e9n\u00e9volement par Laurie, pr\u00e9sidente de l\u2019association.<\/p>\n

Participation 494 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Septembre 2026<\/p><\/div>

<\/div>
\n
\n

Nous finan\u00e7ons une table de bain pliante pour elle, car elle a beaucoup grandi et, avec sa scoliose, son transat de bain actuel n\u2019est plus adapt\u00e9. Sa maman souffre \u00e9galement du dos lors des soins, ce qui rend cet \u00e9quipement indispensable pour leur quotidien.<\/p>\n

Aucune prise en charge n\u2019a \u00e9t\u00e9 accord\u00e9e par la\u00a0MDPH, nous avons donc assum\u00e9 l\u2019int\u00e9gralit\u00e9 du financement.<\/p>\n<\/div>\n

Participation 2285 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/i>

Pathologie :<\/p>\n<\/div>

Syndrome de Rett<\/p>\n<\/div><\/i>

Age :<\/p>\n<\/div>

\n <\/span>\n<\/div>\n<\/div><\/div>
<\/i>

Localisation :<\/p>\n<\/div>

Valserh\u00f4ne (Ain)<\/p>\n<\/div><\/i>

Don total de :<\/p>\n<\/div>

3779 \u20ac<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[46],"tags":[],"class_list":["post-4838","post","type-post","status-publish","format-standard","hentry","category-actions"],"yoast_head":"\nAnessia - 1mil'Lya<\/title>\n<meta name=\"robots\" content=\"noindex, nofollow\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Anessia - 1mil'Lya\" \/>\n<meta property=\"og:url\" content=\"https:\/\/1mil-lya.fr\/en\/nos-actions-anessia\/\" \/>\n<meta property=\"og:site_name\" content=\"1mil'Lya\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/p\/1milLya-61563291535060\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-08T19:18:23+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-10-09T07:54:25+00:00\" \/>\n<meta name=\"author\" content=\"admin3216\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin3216\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-anessia\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-anessia\\\/\"},\"author\":{\"name\":\"admin3216\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#\\\/schema\\\/person\\\/68a542bc17c857d5193872aef06e747e\"},\"headline\":\"Anessia\",\"datePublished\":\"2025-09-08T19:18:23+00:00\",\"dateModified\":\"2026-10-09T07:54:25+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-anessia\\\/\"},\"wordCount\":6964,\"publisher\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#organization\"},\"articleSection\":[\"Actions\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-anessia\\\/\",\"url\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-anessia\\\/\",\"name\":\"Anessia - 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