{"id":4833,"date":"2025-09-08T20:52:50","date_gmt":"2025-09-08T18:52:50","guid":{"rendered":"https:\/\/1mil-lya.fr\/?p=4833"},"modified":"2026-10-09T09:55:48","modified_gmt":"2026-10-09T07:55:48","slug":"nos-actions-emie","status":"publish","type":"post","link":"https:\/\/1mil-lya.fr\/en\/nos-actions-emie\/","title":{"rendered":"Emie"},"content":{"rendered":"

\"Nos<\/span><\/div><\/div>

Emie – 08<\/h1><\/div><\/div><\/div>

<\/span> Notre action<\/span><\/path><\/svg><\/span> <\/span><\/h1><\/div>

Emie est atteinte d’ H\u00e9mipl\u00e9gie Alternante. C’est une maladie neurologique rare<\/strong> et grave<\/strong>. Elle est due \u00e0 une mutation g\u00e9n\u00e9tique. Les \u00e9pisodes de paralysie, de dystonie et d’\u00e9pilepsie sont tr\u00e8s fr\u00e9quents. Chaque crise peut durer de quelques minutes \u00e0 des semaines. Aujourd’hui aucun traitement n’existe.<\/p>\n<\/div>

Historique des dons :\u00a0<\/span><\/p>\n<\/div>

<\/i><\/div>

Avril 2025<\/p><\/div>

<\/div>
\n

Nous avons particip\u00e9 \u00e0 l’achat du fauteuil d’Emie d’une valeur de 4300 \u20ac. Il lui facilite grandement ses d\u00e9placements.<\/p>\n

Participation 1500 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Janvier 2026<\/p><\/div>

<\/div>
\n

Nous avons offert \u00e0 \u00c9mie un iPad afin qu\u2019elle puisse regarder des dessins anim\u00e9s, jouer \u00e0 des jeux interactifs et commencer \u00e0 s\u2019initier \u00e0 la Communication Alternative et Am\u00e9lior\u00e9e (CAA)<\/p>\n

Participation 382 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Septembre 2026<\/p><\/div>

<\/div>
\n

Afin qu’Emie puisse se d\u00e9placer en tout s\u00e9curit\u00e9 lors de ses trajets en voiture nous avons financ\u00e9 un harnais.<\/p>\n

Participation 329 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/i>

Pathologie :<\/p>\n<\/div>

H\u00e9mipl\u00e9gie Alternante<\/p>\n<\/div><\/i>

Age :<\/p>\n<\/div>

\n <\/span>\n<\/div>\n<\/i>

Localisation :<\/p>\n<\/div>

Rethel<\/p>\n

(Ardennes)<\/p>\n<\/div><\/i>

Don total de :<\/p>\n<\/div>

2211 \u20ac<\/p>\n<\/div><\/div><\/div><\/div><\/div>

\"Nos<\/span><\/div>

Emie – 08<\/h1><\/div><\/div><\/div>

<\/span> Notre action<\/span><\/path><\/svg><\/span> <\/span><\/h1><\/div>

Emie est atteinte d’ H\u00e9mipl\u00e9gie Alternante. C’est une maladie neurologique rare<\/strong> et grave<\/strong>. Elle est due \u00e0 une mutation g\u00e9n\u00e9tique. Les \u00e9pisodes de paralysie, de dystonie et d’\u00e9pilepsie sont tr\u00e8s fr\u00e9quents. Chaque crise peut durer de quelques minutes \u00e0 des semaines. Aujourd’hui aucun traitement n’existe.<\/p>\n<\/div>

Historique des dons :\u00a0<\/span><\/p>\n<\/div>

<\/i><\/div>

Avril 2025<\/p><\/div>

<\/div>
\n

Nous avons particip\u00e9 \u00e0 l’achat du fauteuil d’Emie d’une valeur de 4300 \u20ac. Il lui facilite grandement ses d\u00e9placements.<\/p>\n

Participation 1500 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Janvier 2026<\/p><\/div>

<\/div>
\n

Nous avons offert \u00e0 \u00c9mie un iPad afin qu\u2019elle puisse regarder des dessins anim\u00e9s, jouer \u00e0 des jeux interactifs et commencer \u00e0 s\u2019initier \u00e0 la Communication Alternative et Am\u00e9lior\u00e9e (CAA)<\/p>\n

Participation 382 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Septembre 2026<\/p><\/div>

<\/div>
\n

Afin qu’Emie puisse se d\u00e9placer en tout s\u00e9curit\u00e9 lors de ses trajets en voiture nous avons financ\u00e9 un harnais.<\/p>\n

Participation 329 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/i>

Pathologie :<\/p>\n<\/div>

H\u00e9mipl\u00e9gie Alternante<\/p>\n<\/div><\/i>

Age :<\/p>\n<\/div>

\n <\/span>\n<\/div>\n<\/div><\/div>
<\/i>

Localisation :<\/p>\n<\/div>

Rethel (Ardennes)<\/p>\n<\/div><\/i>

Don total de :<\/p>\n<\/div>

2211 \u20ac<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[46],"tags":[],"class_list":["post-4833","post","type-post","status-publish","format-standard","hentry","category-actions"],"yoast_head":"\nEmie - 1mil'Lya<\/title>\n<meta name=\"robots\" content=\"noindex, nofollow\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Emie - 1mil'Lya\" \/>\n<meta property=\"og:url\" content=\"https:\/\/1mil-lya.fr\/en\/nos-actions-emie\/\" \/>\n<meta property=\"og:site_name\" content=\"1mil'Lya\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/p\/1milLya-61563291535060\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-08T18:52:50+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-10-09T07:55:48+00:00\" \/>\n<meta name=\"author\" content=\"admin3216\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin3216\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-emie\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-emie\\\/\"},\"author\":{\"name\":\"admin3216\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#\\\/schema\\\/person\\\/68a542bc17c857d5193872aef06e747e\"},\"headline\":\"Emie\",\"datePublished\":\"2025-09-08T18:52:50+00:00\",\"dateModified\":\"2026-10-09T07:55:48+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-emie\\\/\"},\"wordCount\":5802,\"publisher\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#organization\"},\"articleSection\":[\"Actions\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-emie\\\/\",\"url\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-emie\\\/\",\"name\":\"Emie - 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