{"id":4685,"date":"2025-09-06T11:09:31","date_gmt":"2025-09-06T09:09:31","guid":{"rendered":"https:\/\/1mil-lya.fr\/?p=4685"},"modified":"2026-10-09T10:01:54","modified_gmt":"2026-10-09T08:01:54","slug":"nos-actions-lya","status":"publish","type":"post","link":"https:\/\/1mil-lya.fr\/en\/nos-actions-lya\/","title":{"rendered":"Lya"},"content":{"rendered":"

<\/span><\/div><\/div>

Lya – 74<\/h1><\/div><\/div><\/div>

<\/span> Notre action<\/span><\/path><\/svg><\/span> <\/span><\/h1><\/div>

Lya est atteinte d’ H\u00e9mipl\u00e9gie Alternante. C’est une maladie neurologique rare<\/strong> et grave<\/strong>. Elle est due \u00e0 la mutation du g\u00e8ne . <\/strong>Les \u00e9pisodes de paralysie, de dystonie et d’\u00e9pilepsie sont tr\u00e8s fr\u00e9quents. Chaque crise peut durer de quelques minutes \u00e0 plusieurs semaines. Aujourd’hui aucun traitement n’existe.<\/p>\n<\/div>

Historique des dons :\u00a0<\/span><\/p>\n<\/div>

<\/i><\/div>

Mars 2025<\/p><\/div>

<\/div>
\n

Lya et sa maman ne pouvaient aller se promener toutes les deux convenablement. L’achat d’un triporteur devenait un \u00e9vidence. Nous avons aid\u00e9 pour l’achat de ce triporteur d’une valeur de 4500 \u20ac<\/p>\n

Participation 1000 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Juin 2025<\/p><\/div>

<\/div>
\n

Il devenait de plus en plus difficile de g\u00e9rer les crises de Lya dans son lit. L\u2019achat d\u2019un lit m\u00e9dicalis\u00e9 \u00e9tait indispensable. Nous avons particip\u00e9 \u00e0 l\u2019achat du lit m\u00e9dicalis\u00e9 d\u2019une valeur de 11270 \u20ac.<\/p>\n

Participation : 1500 \u20ac<\/b><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Juin 2026<\/p><\/div>

<\/div>
\n

Lya avait besoin d\u2019un outil adapt\u00e9 pour apprendre \u00e0 communiquer. Nous avons financ\u00e9s un logiciel sp\u00e9cialis\u00e9 permettant de cr\u00e9er des supports PODD, une solution de Communication Alternative et Am\u00e9lior\u00e9e indispensable pour l\u2019aider \u00e0 exprimer ses besoins et ses \u00e9motions.<\/p>\n

Participation : 1040 \u20ac<\/b><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/i>

Pathologie :<\/p>\n<\/div>

H\u00e9mipl\u00e9gie Alternante<\/p>\n<\/div><\/i>

Age :<\/p>\n<\/div>

\n <\/span>\n<\/div>\n<\/i>

Localisation :<\/p>\n<\/div>

Sales (Haute-Savoie)<\/p>\n<\/div><\/i>

Don total de :<\/p>\n<\/div>

3540 \u20ac<\/p>\n<\/div><\/div><\/div><\/div><\/div>

<\/span><\/div>

Lya – 74<\/h1><\/div><\/div><\/div>

<\/span> Notre action<\/span><\/path><\/svg><\/span> <\/span><\/h1><\/div>

Lya est atteinte d’ H\u00e9mipl\u00e9gie Alternante. C’est une maladie neurologique rare<\/strong> et grave<\/strong>. Elle est due \u00e0 la mutation du g\u00e8ne . <\/strong>Les \u00e9pisodes de paralysie, de dystonie et d’\u00e9pilepsie sont tr\u00e8s fr\u00e9quents. Chaque crise peut durer de quelques minutes \u00e0 plusieurs semaines. Aujourd’hui aucun traitement n’existe.<\/p>\n<\/div>

Historique des dons :\u00a0<\/span><\/p>\n<\/div>

<\/i><\/div>

Mars 2025<\/p><\/div>

<\/div>
\n

Lya et sa maman ne pouvaient aller se promener toutes les deux convenablement. L’achat d’un triporteur devenait un \u00e9vidence. Nous avons aid\u00e9 pour l’achat de ce triporteur d’une valeur de 4500 \u20ac<\/p>\n

Participation 1000 \u20ac<\/strong><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Juin 2025<\/p><\/div>

<\/div>
\n

Il devenait de plus en plus difficile de g\u00e9rer les crises de Lya dans son lit. L\u2019achat d\u2019un lit m\u00e9dicalis\u00e9 \u00e9tait indispensable. Nous avons particip\u00e9 \u00e0 l\u2019achat du lit m\u00e9dicalis\u00e9 d\u2019une valeur de 11270 \u20ac.<\/p>\n

Participation : 1500 \u20ac<\/b><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/i><\/div>

Juin 2026<\/p><\/div>

<\/div>
\n

Lya avait besoin d\u2019un outil adapt\u00e9 pour apprendre \u00e0 communiquer. Nous avons financ\u00e9s un logiciel sp\u00e9cialis\u00e9 permettant de cr\u00e9er des supports PODD, une solution de Communication Alternative et Am\u00e9lior\u00e9e indispensable pour l\u2019aider \u00e0 exprimer ses besoins et ses \u00e9motions.<\/p>\n

Participation : 1040 \u20ac<\/b><\/p>\n<\/div>

<\/div><\/div><\/div>
<\/div><\/div><\/div><\/div>
<\/i>

Pathologie :<\/p>\n<\/div>

H\u00e9mipl\u00e9gie Alternante<\/p>\n<\/div><\/i>

Age :<\/p>\n<\/div>

\n <\/span>\n<\/div>\n<\/div><\/div>
<\/i>

Localisation :<\/p>\n<\/div>

Sales (Haute-Savoie)<\/p>\n<\/div><\/i>

Don total de :<\/p>\n<\/div>

3540 \u20ac<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[46],"tags":[],"class_list":["post-4685","post","type-post","status-publish","format-standard","hentry","category-actions"],"yoast_head":"\nLya - 1mil'Lya<\/title>\n<meta name=\"robots\" content=\"noindex, nofollow\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lya - 1mil'Lya\" \/>\n<meta property=\"og:url\" content=\"https:\/\/1mil-lya.fr\/en\/nos-actions-lya\/\" \/>\n<meta property=\"og:site_name\" content=\"1mil'Lya\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/p\/1milLya-61563291535060\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-06T09:09:31+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-10-09T08:01:54+00:00\" \/>\n<meta name=\"author\" content=\"admin3216\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin3216\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/\"},\"author\":{\"name\":\"admin3216\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#\\\/schema\\\/person\\\/68a542bc17c857d5193872aef06e747e\"},\"headline\":\"Lya\",\"datePublished\":\"2025-09-06T09:09:31+00:00\",\"dateModified\":\"2026-10-09T08:01:54+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/\"},\"wordCount\":5950,\"publisher\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#organization\"},\"articleSection\":[\"Actions\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/\",\"url\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/\",\"name\":\"Lya - 1mil'Lya\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#website\"},\"datePublished\":\"2025-09-06T09:09:31+00:00\",\"dateModified\":\"2026-10-09T08:01:54+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/#breadcrumb\"},\"inLanguage\":\"en-GB\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/nos-actions-lya\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\\\/\\\/1mil-lya.fr\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Lya\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#website\",\"url\":\"https:\\\/\\\/1mil-lya.fr\\\/\",\"name\":\"1mil'Lya\",\"description\":\"B\u00e2tisseurs de sourires & Initiateurs de souvenirs\",\"publisher\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/1mil-lya.fr\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-GB\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#organization\",\"name\":\"1mil'Lya\",\"url\":\"https:\\\/\\\/1mil-lya.fr\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/1mil-lya.fr\\\/wp-content\\\/uploads\\\/2025\\\/08\\\/Big_Logo.png\",\"contentUrl\":\"https:\\\/\\\/1mil-lya.fr\\\/wp-content\\\/uploads\\\/2025\\\/08\\\/Big_Logo.png\",\"width\":900,\"height\":900,\"caption\":\"1mil'Lya\"},\"image\":{\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/p\\\/1milLya-61563291535060\\\/\",\"https:\\\/\\\/www.instagram.com\\\/1mil_lya\\\/?hl=fr\",\"https:\\\/\\\/www.youtube.com\\\/@1milLya2024\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/1mil-lya.fr\\\/#\\\/schema\\\/person\\\/68a542bc17c857d5193872aef06e747e\",\"name\":\"admin3216\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/33a86fb98985bd95495115a53785655102b1f43c0c89e8c0057f990d69ec9313?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/33a86fb98985bd95495115a53785655102b1f43c0c89e8c0057f990d69ec9313?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/33a86fb98985bd95495115a53785655102b1f43c0c89e8c0057f990d69ec9313?s=96&d=mm&r=g\",\"caption\":\"admin3216\"},\"sameAs\":[\"https:\\\/\\\/1mil-lya.fr\"],\"url\":\"https:\\\/\\\/1mil-lya.fr\\\/en\\\/author\\\/admin3216\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Lya - 1mil'Lya","robots":{"index":"noindex","follow":"nofollow"},"og_locale":"en_GB","og_type":"article","og_title":"Lya - 1mil'Lya","og_url":"https:\/\/1mil-lya.fr\/en\/nos-actions-lya\/","og_site_name":"1mil'Lya","article_publisher":"https:\/\/www.facebook.com\/p\/1milLya-61563291535060\/","article_published_time":"2025-09-06T09:09:31+00:00","article_modified_time":"2026-10-09T08:01:54+00:00","author":"admin3216","twitter_card":"summary_large_image","twitter_misc":{"Written by":"admin3216","Estimated reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/1mil-lya.fr\/nos-actions-lya\/#article","isPartOf":{"@id":"https:\/\/1mil-lya.fr\/nos-actions-lya\/"},"author":{"name":"admin3216","@id":"https:\/\/1mil-lya.fr\/#\/schema\/person\/68a542bc17c857d5193872aef06e747e"},"headline":"Lya","datePublished":"2025-09-06T09:09:31+00:00","dateModified":"2026-10-09T08:01:54+00:00","mainEntityOfPage":{"@id":"https:\/\/1mil-lya.fr\/nos-actions-lya\/"},"wordCount":5950,"publisher":{"@id":"https:\/\/1mil-lya.fr\/#organization"},"articleSection":["Actions"],"inLanguage":"en-GB"},{"@type":"WebPage","@id":"https:\/\/1mil-lya.fr\/nos-actions-lya\/","url":"https:\/\/1mil-lya.fr\/nos-actions-lya\/","name":"Lya - 1mil'Lya","isPartOf":{"@id":"https:\/\/1mil-lya.fr\/#website"},"datePublished":"2025-09-06T09:09:31+00:00","dateModified":"2026-10-09T08:01:54+00:00","breadcrumb":{"@id":"https:\/\/1mil-lya.fr\/nos-actions-lya\/#breadcrumb"},"inLanguage":"en-GB","potentialAction":[{"@type":"ReadAction","target":["https:\/\/1mil-lya.fr\/nos-actions-lya\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/1mil-lya.fr\/nos-actions-lya\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/1mil-lya.fr\/"},{"@type":"ListItem","position":2,"name":"Lya"}]},{"@type":"WebSite","@id":"https:\/\/1mil-lya.fr\/#website","url":"https:\/\/1mil-lya.fr\/","name":"1mil'Lya","description":"B\u00e2tisseurs de sourires & Initiateurs de souvenirs","publisher":{"@id":"https:\/\/1mil-lya.fr\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/1mil-lya.fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-GB"},{"@type":"Organization","@id":"https:\/\/1mil-lya.fr\/#organization","name":"1mil'Lya","url":"https:\/\/1mil-lya.fr\/","logo":{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/1mil-lya.fr\/#\/schema\/logo\/image\/","url":"https:\/\/1mil-lya.fr\/wp-content\/uploads\/2025\/08\/Big_Logo.png","contentUrl":"https:\/\/1mil-lya.fr\/wp-content\/uploads\/2025\/08\/Big_Logo.png","width":900,"height":900,"caption":"1mil'Lya"},"image":{"@id":"https:\/\/1mil-lya.fr\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/p\/1milLya-61563291535060\/","https:\/\/www.instagram.com\/1mil_lya\/?hl=fr","https:\/\/www.youtube.com\/@1milLya2024"]},{"@type":"Person","@id":"https:\/\/1mil-lya.fr\/#\/schema\/person\/68a542bc17c857d5193872aef06e747e","name":"admin3216","image":{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/secure.gravatar.com\/avatar\/33a86fb98985bd95495115a53785655102b1f43c0c89e8c0057f990d69ec9313?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/33a86fb98985bd95495115a53785655102b1f43c0c89e8c0057f990d69ec9313?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/33a86fb98985bd95495115a53785655102b1f43c0c89e8c0057f990d69ec9313?s=96&d=mm&r=g","caption":"admin3216"},"sameAs":["https:\/\/1mil-lya.fr"],"url":"https:\/\/1mil-lya.fr\/en\/author\/admin3216\/"}]}},"_links":{"self":[{"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/posts\/4685","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/comments?post=4685"}],"version-history":[{"count":49,"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/posts\/4685\/revisions"}],"predecessor-version":[{"id":5721,"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/posts\/4685\/revisions\/5721"}],"wp:attachment":[{"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/media?parent=4685"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/categories?post=4685"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/1mil-lya.fr\/en\/wp-json\/wp\/v2\/tags?post=4685"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}