{"id":3659,"date":"2019-10-09T12:08:06","date_gmt":"2019-10-09T12:08:06","guid":{"rendered":"https:\/\/avadawebsites.wpengine.com\/festival\/?page_id=2"},"modified":"2026-10-09T11:19:36","modified_gmt":"2026-10-09T09:19:36","slug":"1-millya","status":"publish","type":"page","link":"https:\/\/1mil-lya.fr\/en\/","title":{"rendered":"Accueil"},"content":{"rendered":"

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26\/09\/2026<\/p>\n

1mil’Lya a particip\u00e9 au Symposium ATP1A3 2026.<\/p>\n

Plus d’infos<\/a><\/p>\n<\/div><\/div><\/blockquote>

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\"Ludovik<\/div>
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09\/10\/2026<\/p>\n

Bianca est arriv\u00e9e dans le foyer de Ludovik<\/p>\n

Voir la page de Ludovik<\/a><\/p>\n<\/div><\/div><\/blockquote>

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2026 Race results<\/span><\/span><\/div><\/a><\/div><\/div><\/div>

1mil’Lya<\/h1><\/div>

An association working for children with neurological disorders<\/p>\n<\/div>

\u00a0\ud83e\udd29 Discover our world \ud83e\udd29<\/p>\n<\/div><\/div><\/div>

L<\/p>\n<\/div>

like Lya<\/i><\/p>\n<\/div>

I\u2019m Lya \ud83d\ude0a I\u2019m 4 years old today, and I\u2019ve been my parents\u2019 ray of sunshine since July 2022!<\/p>\n

I live in Haute-Savoie, in the commune of Sales.<\/p>\n

I marvel at the vastness and beauty of the trees that nature offers us!<\/p>\n

But what I like best is when my dad comes home from work, because that\u2019s when I laugh out loud thanks to his tickling.<\/p>\n<\/div>

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\"Illustration<\/span><\/div>

Y<\/p>\n<\/div>

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the chromosome that makes me unique in the world !<\/i><\/p>\n<\/div>

I have had alternating hemiplegia since birth; it is a rare neurological disorder affecting one in a million people (hence the name of my association \ud83d\ude09). It is caused by a mutation in the ATP1A3 gene ATP1A3<\/strong>.<\/p>\n

Today, it is a disease that cannot be cured, but tomorrow, thanks to your help, everything could change !<\/p>\n

On a daily basis, I suffer from attacks :<\/p>\n